The Twilight of Diagnosis

Twilight – that time between the clarity of day and the murky darkness of night. When I got diagnosed with Ehlers-Danlos Syndrome (EDS) at 55, I was told by the doc that it was untreatable and uncureable and to just go home and forget about it. Once so much came online about it, I was able to get further but except for odd surgeries, cysts and hernias, it all seem to just go along without massive problems.

Comments Off on The Twilight of Diagnosis

Can You See Me Now?

Just recently I moved into a new category of disabled. For many years I've been part of the invisibly disabled. Struggling everywhere - whether in a store, in a crowd, in a parking lot. I started asking young people to help me - playing the little ole woman thing. But I so often had to ask. And sometimes it's just easier to go home, stop shopping, stop looking for a parking place.

Comments Off on Can You See Me Now?