The Twilight of Diagnosis

Twilight – that time between the clarity of day and the murky darkness of night. When I got diagnosed with Ehlers-Danlos Syndrome (EDS) at 55, I was told by the doc that it was untreatable and uncureable and to just go home and forget about it. Once so much came online about it, I was able to get further but except for odd surgeries, cysts and hernias, it all seem to just go along without massive problems.

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Welcome to My World!

Having the world slow down and turn to mostly online interactions only, I found this new world to be a mixed blessing. As my physical issues have increased over the past 5 years, it's been increasingly harder for me to get out and about easily. I'm also basically an introvert as well so withdrawing into semi-isolation is quite normal for me. Then came COVID-19. And my social life picked up.

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