The Twilight of Diagnosis

Twilight – that time between the clarity of day and the murky darkness of night. When I got diagnosed with Ehlers-Danlos Syndrome (EDS) at 55, I was told by the doc that it was untreatable and uncureable and to just go home and forget about it. Once so much came online about it, I was able to get further but except for odd surgeries, cysts and hernias, it all seem to just go along without massive problems.

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I’m back…

My last post before today was nearly 2 years ago. In the meantime, I've been working on moving to Maine and healing from my last surgery. A year after our move, I'm working on figuring out what I want to do with the rest of my life. I may be old but since Mom's still alive at 98, I may get even older still. In the meantime, I still have…

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